Next Steps for IBC Network Foundation Canada
We’re not starting from scratch, but there’s still a lot that needs to change. Right now, our focus is on building practical, meaningful progress in a few key areas:
Improve IBC education and awareness:
IBC is still widely misunderstood. We’re working to create resources that actually reflect how this disease presents and is treated, for both patients and healthcare providers, so fewer people are misdiagnosed or dismissed.
Work toward consistent IBC care across Canada:
Access to appropriate IBC care shouldn’t depend on where you live. We’re working with clinicians and partners to support the development and awareness of standardized approaches to diagnosis and treatment.
Strengthen IBC research and clinical trial access:
IBC continues to be underrepresented in research. We’re advocating for increased focus, better data, and more opportunities for Canadian patients to access and participate in clinical trials.
Support and strengthen patient advocacy:
Patients are often left to navigate this disease on their own. We’re building tools, resources, and community connections that help patients understand what they’re facing and feel more confident advocating for their care.
We’ve seen progress, but we’ve also seen how much is still missing.
This work is about closing those gaps. And making sure no one is left trying to figure this out on their own.