About Us
Our MISSION
To promote and fund Canadian research about Inflammatory Breast Cancer
To educate the public and healthcare professionals
To provide advocacy, information and support
Our vision
Our vision is for a Canada where Inflammatory Breast Cancer is no longer a life-threatening diagnosis. We strive to empower patients, educate the public, and collaborate with the medical community to transform the landscape of IBC so that it is comprehensively understood, promptly diagnosed, and effectively treated.
Through unwavering dedication, research, and support, we envision a future where IBC is eradicated, offering hope and healing to those impacted by this rare and aggressibve form of cancer.
The IBC Network Foundation Canada was founded to address the critical gaps in education, awareness, research, and resources for those affected by Inflammatory Breast Cancer. As a rare and aggressive form of breast cancer, IBC is often misunderstood and misdiagnosed, leading to dangerous delays in treatment and poor outcomes. We are committed to educating the public and the Canadian medical community about IBC’s unique symptoms and challenges, advocating for a better diagnostic process, better treatment options and supporting cutting-edge research. Our goal is to drive change, empower patients, and ensure that no one faces this journey alone. Together, we strive to bring hope, knowledge, and a stronger voice to the IBC community.
BOARD OF DIRECTORS
Danielle Cameron
President & Founder
Who am I?
Hi, I’m Danielle Cameron, the President and Founder of the IBC Network Foundation Canada. With a background as an educator and experience as the Executive Director for two small non-profit childcare centers, my professional journey has been deeply rooted in service and care. Outside of my work with the foundation, I cherish time spent with my family, whether at our trailer or traveling and teaching my children to appreciate the beauty around us. I also volunteer as a patient advisor and peer supporter at my hospital.
Why did I join the IBC Network Foundation Canada?
My connection to this charity is deeply personal. While pregnant with my third child, I experienced the first symptoms of Inflammatory Breast Cancer. Despite diligent care from my team, I was misdiagnosed with mastitis, a common issue with IBC and rapidly progressed to stage 4.
Throughout the beginning of my journey, I felt a profound sense of isolation despite having a strong support network and excellent medical care. Four months into my diagnosis, I discovered an Inflammatory Breast Cancer Facebook support group founded by Terry Arnold of the IBC Network Foundation in the US but I noticed a lack of Canadian representation and resources. The Canadian women I did connect with voiced their frustrations about the lack of Canadian IBC data and guidelines and expressed a desire to support a Canadian IBC organization but such an entity didn’t exist. I realized the urgent need for a dedicated Canadian IBC organization.
What do I hope to contribute?
My vision for the IBC Network Foundation Canada is to fund life-saving research and to provide comprehensive education, advocacy, and support to Canadians facing Inflammatory Breast Cancer. I am deeply committed to building an informed and empowered community for Canadians and their families and helping to ensure appropriate care and essential resources. Additionally, I am passionate about educating the medical community to enhance the diagnosis process and improve treatment outcomes. Every day is a gift, and I am deeply grateful for the support I have received. I am passionate about giving back and making a difference in any way I can.
Deb Mosnyk
Secretary
Who am I?
My name is Deb Mosnyk and I am a retired and proud grandma of three. In my working life, I was an occupational therapist and professor. I have just started as a Board Member and Secretary for the IBC Foundation Network Canada.
Why did I join IBC Network Foundation Canada?
I became aware of IBC because of the diagnosis of a close family member. The more I learned about IBC, the more I wanted to do something to support not only my family member, but others with IBC. A Canadian foundation focused on IBC seemed to be the perfect way to make a difference.
What do I hope to contribute?
I have been on the boards of several professional associations and non profits. As this foundation gets going, I hope that I can share my passion and enthusiasm for the cause as well as my past experience. I also look forward to meeting more members of this wonderful community.
Kerry Goulding
Treasurer
Who am I?
Hi, I’m Kerry Goulding, one of the founding board members and Treasurer of the IBC Network Foundation Canada. I’m a Production Accountant for film and television, based in Vancouver and Toronto. In my spare time, I enjoy concerts, reading, photography, podcasts, snowboarding, traveling, and volunteering at the SPCA.
Why did I join the IBC Network Foundation Canada?
When my best friend was diagnosed with IBC in 2019, it was life-changing in so many ways. She has been a shining light, an absolute warrior and a beacon of positivity. I want to honour her journey, her fight, and her survival, by helping others.
What do I hope to contribute?
My dream is to help establish a flourishing support network from coast to coast, offering resources, compassion and community to the many women and their loved ones whose lives are touched by IBC.